Patient organisations (813)

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groups
United Kingdom

Therapeutic Areas

Nervous system disorders

Diseases

Nervous system disorder

Neuroliitto, established in 1971 and headquartered in Masku, Finland, is a registered association dedicated to supporting individuals with multiple sclerosis (MS) and rare neurological diseases, as well as their…

groups
Germany

Therapeutic Areas

Nervous system disorders

Diseases

Amyotrophic lateral sclerosis gene carrier

niemALS aufgeben e.V. was established in March 2018 in Schwabmünchen, Germany. The organization was founded by Nina Königs and her friends following her father's diagnosis with Amyotrophic Lateral Sclerosis (ALS). As a…

groups
United Kingdom

Therapeutic Areas

Endocrine disorders

Diseases

Chronic kidney disease

Njurförbundet, established in 1969, is a Swedish patient organization dedicated to advocating for individuals with kidney diseases. The organization was founded five years after the first kidney transplantation in…

groups
United Kingdom

Therapeutic Areas

Blood and lymphatic system disorders

Diseases

Haematological neoplasm

The Nordic Society of Paediatric Haematology and Oncology (NOPHO) was formally established in 1984 in Reykjavik, following a merger of the Nordic Hematology Society and the Nordic Society for Pediatric Oncology. This…

groups
United Kingdom

Therapeutic Areas

Respiratory, thoracic and mediastinal disorders

Diseases

Respiratory disorder

Norges Astma- og Allergiforbund (NAAF) was established on January 24, 1960, by Alfred Simonsen. The organization is headquartered in Oslo, Norway, and operates as a membership-based interest organization. NAAF exists to…

groups
United Kingdom

Therapeutic Areas

Congenital, familial and genetic disorders

Diseases

Angelman's syndrome

The Norsk Forening for Angelman Syndrom (NFAS) was established in 1997 and is headquartered in Norway. As a legally recognized organization, it was founded to address the needs of individuals affected by Angelman…

groups
United Kingdom

Therapeutic Areas

Congenital, familial and genetic disorders

Diseases

Rett syndrome

The Norsk Forening for Rett Syndrom was established in 1987, with its headquarters located in Hamar, Norway. It operates as a legally recognized association, formed by parents of girls diagnosed with Rett Syndrome. The…

groups
United Kingdom

Diseases

Neoplasm malignant

The Norwegian Cancer Society, established in 1938, is a prominent organization headquartered in Oslo, Norway. It operates as a non-profit entity dedicated to addressing the challenges posed by cancer. Over the years…

groups
United Kingdom

Therapeutic Areas

Endocrine disorders

Diseases

Chronic kidney disease

Nyreforeningen, established in 1975, is a Danish patient organization dedicated to supporting individuals with kidney and urinary tract diseases, their families, and donors. Headquartered in Denmark, the organization…

groups
Spain

Therapeutic Areas

Metabolism and nutrition disorders

Diseases

Osteoporosis

Established in 2016, the Osteoarthritis Foundation International (OAFI) is headquartered in Barcelona, Spain. It operates as a non-profit organization dedicated to addressing the needs of individuals affected by…

groups
Spain

Therapeutic Areas

Congenital, familial and genetic disorders

Diseases

Rare disease

Established in 2022, Objetivo Diagnóstico is headquartered in Elche, Alicante, and operates as a legally recognized association. The organization was founded to address the critical need for diagnosis among individuals…

groups
United Kingdom

Therapeutic Areas

Skin and subcutaneous tissue disorders

Diseases

Melanoma

Ocular Melanoma UK, formerly known as OcuMel UK, was established to provide dedicated support to individuals affected by ocular melanoma. The organization is headquartered in the United Kingdom and operates as a…

groups
Poland

Therapeutic Areas

Eye disorders

Diseases

Dry eye

No description available.

groups
Poland

Therapeutic Areas

Endocrine disorders

Diseases

Chronic kidney disease

Established in 2004, the Ogólnopolskie Stowarzyszenie Osób Dializowanych (OSOD) is headquartered in Kraków, Poland. It operates as a legally recognized association, focusing on supporting individuals undergoing dialysis…

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